Scientific research

Disruptive business

SalusCoop: The first citizen health data cooperative

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Pantalla de all Salus Coop
Pantalla de all Salus Coop

Area

Consulting, Communication and Research

Client

-

Year

2018

Impact

A tool that activates citizen data governance in health, bringing medical research closer to the public.

How can citizens create new social institutions for the collective governance of data for the common good?

SalusCoop is the first health data cooperative in Spain. It allows citizens to take a more personalized role in controlling their health data by enabling them to aggregate data, set the conditions under which it can be used, and share it to accelerate research and address urban health issues.

The aim of this model is to legitimise citizens' ownership of the data, so as to enable them to exert greater control over the fate of their records, and facilitate data sharing to accelerate research and innovation in the field of health. The initiative brings together research and analysis to combine the ideas of key stakeholders in the health sector and the health data ecosystem, and is based on three key aspects:

  • The governance and relationships framework

  • The technological framework

  • The legal framework

How can citizens create new social institutions for the collective governance of data for the common good?

SalusCoop is the first health data cooperative in Spain. It allows citizens to take a more personalized role in controlling their health data by enabling them to aggregate data, set the conditions under which it can be used, and share it to accelerate research and address urban health issues.

The aim of this model is to legitimise citizens' ownership of the data, so as to enable them to exert greater control over the fate of their records, and facilitate data sharing to accelerate research and innovation in the field of health. The initiative brings together research and analysis to combine the ideas of key stakeholders in the health sector and the health data ecosystem, and is based on three key aspects:

  • The governance and relationships framework

  • The technological framework

  • The legal framework

Our role

Our role

  • Research

  • Civic Participation

  • Implementation of the Pentagrowth Methodology

  • Launch of the SalusCoop App

  • Communication and Dissemination Campaigns

Team

Javi is recognized as one of the most innovative strategists and thinkers in open and contributory business models, the collaborative economy, institutional and civic innovation, and network society. At Ideas for Change, he inspires the team to achieve excellence by blending analytical rigor with strategic creativity.

LinkedIn

javicreus@ideasforchange.com

Javi Creus

Founder and CEO

With a background in social innovation, digital culture, science, art, and technology, Anna leads EU-funded projects such as DLT4EU, TwinERGY, HeritACT, and GreenInCities. Her work focuses on tackling urgent social and environmental challenges through digital and human-centered solutions, empowering communities with participatory, open, and data-driven innovations.

LinkedIn

annahigueras@ideasforchange.com

Anna Higueras

Project Manager

Giovanni is a researcher passionate about exploring current challenges at the intersection of technology, institutions, and society. With a background in engineering and a PhD in Information Systems, his research interests encompass IT and data governance, smart cities, open data and technology, and Management Information Systems (MIS).

LinkedIn

giovannimaccani@ideasforchange.com

Giovanni Maccani

Research Director

Client

Client

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SalusCoop: The citizen data health cooperative

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